On February, 28 is the Rare Disease Day. It was first established 10 years ago on the last day of February to raise awareness about rare diseases. What started as a small European event now turned into a world tradition with 94 countries participating.
1 in 20 people can be diagnosed with such a disease at some point in their life. Despite this, there is no cure for the majority of rare conditions. There are a lot of types of rare diseases: cancers (gliosarcoma, teratoma), tumors (acoustic neurinoma), syndromes (Ackerman syndrome, Shapiro syndrome), infectious diseases (histoplasmosis, mucormycosis), etc.
The most well-known one is Marfan Syndrome. It is a disorder of the connective tissue in the human body caused by genetic factors. Patients affected by Marfan Syndrome are usually tall, thin, with long arms, legs, and fingers.
A lot of famous people suffered from this disorder:
- Sergei Rachmaninov (a composer and pianist),
- Niccolo Paganini (violinists),
- Julius Caesar (a Roman politician and general),
- Abraham Lincoln (the 16th president of the United States of America),
- Hans Christian Andersen (the Danish author of classic stories).
We are joining the effort to raise awareness about rare diseases and made an infographic with main facts and figures regarding this topic.

All medical content on this page is prepared by authors with specialized medical education and reviewed by certified physicians in the relevant field. Medical review by Fahad Mawlood, Medical Editor & Data Scientist.
Last updated: October 18, 2023.
- Statistics: Figures are based on Bookimed’s internal database January 2026, which includes analysis of 12,450 patient requests across accredited clinics in .
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- Clinical Data: Treatment outcomes and patient satisfaction figures are collected from Bookimed’s verified clinic database and supported by data from peer-reviewed medical sources such as PubMed, The Lancet, JAMA, and NEJM (2023–2026).
All data is provided for general informational purposes and may not represent individual results or experiences.


